Tuesday, April 21, 2009

It's been a while-Bri's Doing Great!


It has been a while! Bri is going into her 8th week of the Methotrexate injections (every monday night)! Whew, it gets harder and harder each week when Eric and I have to do this! I thought that maybe I would get use to the needles...nope not a chance:). These injections make her tired and kindof cranky the next day! Thank God she has had no "visible" side effects such as soars in her mouth, rashes or hair thinning, cough, and liver problems (her recent blood work showed her liver to be fine). This past week she was really irritable and I'm wondering if it's the Naproxen that is bothering her stomach? So we are going to her Rheum next week and I have my list of questions to ask him. It seems to me that her right knee when she walks kindof bends in way too much and her leg also seems longer than the other. These are things I will definantely have checked out! But Bri is so precious and so smart! She loves "boats" now, every time she sees a boat she gets all excited "boat boat" she says! She loves her brothers "D" they are both called that, and she loves her 2 sissies-especially when she can hang out with them and play outside with all the "big girls"! She has said some funny things lately-we were driving by a baseball field and some boys were playing and she got all excited and said "D mommy D" her brother David plays ball so she thought that was him...too cute! She also loves Daddy soo much...he was lying on the floor and the bulldog was attacking him so I was sitting in the kitchen. Bri walks over to me, grabs my hand walks me over to the side of Eric, taps on the floor (which means sit down) so I sat and she tapped the floor again (she wanted me to lie down right next to Eric:)) than she went around to Erics other side lied down, took his arm and wrapped it around her! She is too hilarious! And you know what, her smile, her laugh, her voice talking...and all day it's "mama, mama" "mamamama" makes me smile! I am so thankful that she is just being such a little TIGER through all of this! She's so full of life and love! And we cannot wait to walk for the Arthritis Foundation on May 2nd! There was an article that I want everyone to read...Mikayla is such an inspiration please read this: http://www.arthritis.org/mikaylas-testimony.php! Wow! And here is the paragraph and why I want to help:
"I am here today to ask Congress to focus more attention on kids like me with arthritis. Research is the key to a cure. Research has led to newer drugs that help kids stay out of wheelchairs, but these drugs can have really bad side effects. We need a cure! Right now, the government spends $9.8 million at N.I.H. for juvenile arthritis research. That sounds like a lot of money to me but when you think of the nearly 300,000 kids that works out to be just about $32 per child. "

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